It’s been awhile since we gave an update on Adrian. Time sure has flown by the last couple months (in a good way). AJ’s been happy and healthy, and thankfully we haven’t had any trips to the hospital outside of regular monthly check-ups.
AJ had a monthly appointment this morning and all of his blood counts look great. In fact the doctor increased his dosage of methotrexate, one of his medications (they like to increase the dose as much as can be tolerated without bringing the counts down too low). His ANC is at 2140 currently. All in all, the monthly doctor visits and daily medication schedule has become somewhat routine. It’s hard to believe he’s been in Maintenance for 6 months now, and also that we’re only a few weeks away from the 1-year mark of his diagnosis. Amazing how different our lives are a year later, yet in many ways we are fortunate that many things are still the same and we are able to lead relatively normal lives — although sometimes it feels like there is a black cloud following us around, or at least it’s in the back of our minds. Hopefully over time the cloud will dissipate and we’ll never have to worry about the disease coming back.
We had a super fun trip to Disneyland in April. AJ and Camille loved it. As parents it was touching to see the joy on their faces as they explored the park, tried out the rides, and met various characters and princesses. AJ surprised us by really enjoying some of the bigger/scarier rides. He went on Space Mountain, Big Thunder Railroad and Splash Mountain multiple times. His favorite ride was Star Tours, a simulation ride based on Star Wars in which a robot takes you on an adventure in a spaceship. Camille, on the other hand, was a bit more timid when it came to the rides. She was too small to go on some of the larger rides, but even if she were tall enough we don’t think she would have wanted to try them. Her favorite turned out to be a Winnie the Pooh ride, which happened to be across from Splash Mountain. Turns out Camille could ride the Winnie the Pooh ride with one parent 2-3 times in a row while AJ was on Splash Mountain with the other parent. We approached our trip using the “Insiders Guide to Disneyland” philosophy, which is basically to get to the park super early and ride the rides in a certain order to minimize wait time. We couldn’t have been happier with the results as we had very little wait time. There were a couple mornings where we were able to enter the park an hour early and we probably knocked out 6-7 rides in that time, with no lines at all!
After Disneyland, we drove to Palm Desert to visit Sarah’s sister Laura and her husband Peter and son Jackson. We had a fun visit, and the kids just loved swimming in the pool. Laura was over 8 months pregnant at the time, and a few weeks after our visit (May 6) she gave birth to a healthy little girl named Alexandra. AJ and Camille are excited to have another cousin! Sarah and Camille are fly
ing down to go visit Laura and the new baby this week, while AJ will stay at home with Brian. Turns out Brian’s parents will be coming to town for a long weekend, so AJ will get to spend some time with Grammie and Bapa.
We don’t have any big summer plans yet, but we are looking forward to the nice warm weather and long days.
We almost pulled out the kids’ swimming pool this past weekend… but then decided it wasn’t quite warm enough yet. We’re almost there though. We’ll continue to give monthly or bi-monthly updates on AJ, but hoping for only continued good news. As always, please continue to keep the little guy in your thoughts and prayers.
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